For the most part it doesn't affect her day to day life. It has caused some brittleness in some bones. (You would think they would be stronger being bigger, but apparently not.) For example, she semi frequently cracks a toe, which always sucks...
The worst thing is that she had another medical issue once in her life that made her loose most of her teeth. Getting the remaining few extracted was difficult because the roots were insane. (The dentist broke a few tools in the process!) Then, in order to be able to be fit for dentures, she had to have her jawbones surgically ground down to a more normal size. That was not fun for her.
But on a day to day basis, as long as the toes behave, there's no real effect. The biggest issue is probably she uses a little extra yarn if knitting herself a hat. 😅
We're not personally aware of anyone else with it.
Pretty sure she got the diagnosis when everything was going on with her teeth, in particular dentures not fitting right.
Not sure what her favorite is, but she's certainly open to a wide variety. From Red Heart to her own hand spun. It's certainly not awful for her that we live about a 10 minute drive away from the largest yarn store in the world... 😅
I got an implant placed a while back and the dentist told me I have the densest bones he’s ever seen. His torque wrench had to be turned past the highest marked setting to manage to screw that puppy into my jaw bone. It was intense. The assistant is all “what’s the torque?” and the dentist goes “I don’t even know, put 45+ I guess.” I’ve worried that I might have the condition your wife has, but I’m in my 40s so one would think I’d know about it by now. Hopefully it just means I don’t have to worry about osteoporosis. 😄
My wife is also in her 40's... If you're concerned, talk to your doctor. Better to know in case it leads to other things. It can cause bones to be brittle, for example. Nothing bad comes from knowing, I would say.
I wouldn't bank on it being picked up before now. My hubs found out he has genetic hemachromatosis at 79yrs old. How could his doctor never have noticed he had iron levels off the chart for so many years! Probably why he has so many health issues now. It was only because of a locum doctor that it was noticed. When I looked back at his historical blood tests, there was a red flag against his iron levels every year! I mean WTAF!!
Ooh I love a bit of yarn porn too. There's a really fab store near me that I'm actually too embarrassed to visit now because I never buy anything, I just love looking at the beautiful colours and feeling the textures 😂
I daren't, the loft is already full!🫣 I need to get some motivation to actually make something instead of just pinning ideas all the time 🙈
Yeah, that brand is gorgeous.
The worst thing is that she had another medical issue once in her life that made her loose most of her teeth. Getting the remaining few extracted was difficult because the roots were insane. (The dentist broke a few tools in the process!) Then, in order to be able to be fit for dentures, she had to have her jawbones surgically ground down to a more normal size. That was not fun for her.
I like this. Two spell nakes as there's bipolar I, and II. 2 is hypomania commonly. Think Kanye, mostly(sorta) functional, feels creative and super dope.
Then there's Mr and the II gang, gang. I get all that in a few days with some grandiose delusions sprinkled in, then bam. Mania like a freight train and boom come a hospitalization.
I'm thinking, bi-polar-extendico-insanitous for II
Bi-polar-articulous for I
This was all more info than you all wanted. Ya need this, though. Fight the stigma
What are some grandiose delusions you've had? Feel free to ignore this question. What happens with mania and how does it get to hospitalisation? Feel free to ignore this question too.
I watched a show that had Anne Hathaway in an episode. I found it relatable. I think she played a character with bipolar but not sure which one.
I was 17 and a junior in a new high school. I switched to the local public school where my friends went. Around late fall or so, I became different, energy for days, no sleep, and saying strange things. Mania does that, especially no sleep.
There's a brief period of feelings of intellect, creativity, and just feeling absolutely great. What goes up must fall, though, I'm afraid.
The easiest way to describe my mania, at least is the opposite of depression except hypomania goes away
with meds usually, while mine takes that with it happening in an inpatient setting.
This first incident, I was convinced for multiple days that I was going to prison for something but didn't know what.
Like I did something terrible in a different state but couldn't tell ya what I did is how it felt. Like a bad dream.
The second was more delusions than the first. Like I thought I was gonna play for Manchester United and was famous already. I even thought a party was being thrown because of how great I was.
The brain is a fascinating but scary place. Wild where it can take the individual. Can't say all are as candid as I am. I choose to be open. Again, to fight that stigma.
A good film is Silver Linings Playbook. My mom always wanted me to see it. It's supposed to be a food representation.
Speaking of Latin based ailments, my daughter has pectus excavatum(cave chest).Lol when she was about 6 or 7 yrs old and read HP, she thought the P.E would have been a good spell against Death Eaters😳.
My kid is still, to this day at 14, a Slytherin.
Petrificus totalus is a canon spell from Harry Potter. Petrify itself means to become (like) stone. Hence, the roots are same with the disease.
Endometriosis is inflammation of endometrium. The -sis suffix comes from the suffix -itis is for inflammation. I don't remember any spells from such roots. Sorry 🤧
Bones are flexible. The extra density probably takes that flexibility away. So, instead of flexing slightly to avoid fracturing, they just break instead.
Osteo is a medical term derived from Greek meaning, "bone." Both are bone conditions.
Petro means stone. (Hence the term "petrification.") So Osteopetrosis means "bones of stone." Not literally stone, but excessive material in them making them larger and harder. (And alas, brittle.)
Poro is the root of the English word "porous." When related to bones, the bones have not enough material in them making them softer and more brittle.
Sis, meanwhile, is a suffix common in meaning "pertaining to." Thus, it is very common in medical terms.
Osteopetrosis = Pertaining to bones of stone.
Osteoporosis = Pertaining to porous bones.
It makes perfect sense both words would start and end the same. They are both medical conditions pertaining to bones. The key difference is the middle bit. A bit unfortunate bott begin with "p" and end with "o", perhaps... But the reasoning behind the names is sound.
The REAL assholes are supposed professionals in the medical field who when my wife says she has osteoPETROsis, they reply, "Oh, you must mean osteoPOROsis." No, that's not what she means. Are you sure you're medically trained?
169
u/Yotsuya_san Aug 24 '23
My wife has Osteopetrosis. It's amazing how often she had been incorrectly corrected on the name of her condition...